The Alliance has a UK-wide remit and is open to registered charities who have a strong primary focus on blood cancer. Our current members are:
ACLT, Anthony Nolan, Bloodwise, CLL Support, CML Support Group, DKMS, Leukaemia Care, Leukaemia and Lymphoma NI, Leukaemia UK, Lymphoma Action, MDS UK Patient Support Group, Myeloma UK, WMUK.
The ACLT (African Caribbean Leukaemia Trust) is a 41 times award winning charity dedicated to raising the number of Black and Ethnic Minority donors on the UK stem cell, blood and organ registers. It was founded in 1996 by Beverley De-Gale OBE and Orin Lewis OBE shortly after their six year old son Daniel De-Gale was diagnosed with Acute Lymphoblastic Leukaemia. Daniel faced odds of over 1 in 250,000 chances of finding a matching donor due to the distinct shortage of people of African-Caribbean heritage. A donor was eventually found for Daniel, (after an extensive worldwide campaign) in June 1999, but he tragically died nine years later due to health complications which resulted in Multiple Organ Failure.
Anthony Nolan is the charity that matches incredible individuals willing to donate their stem cells, to people with blood cancer and blood disorders in desperate need of a lifesaving transplant. Every day, we give three people a second chance of life.
We’re the UK’s leading blood cancer charity. Since we were founded in 1960, we’ve spent £500 million on blood cancer research to improve treatment and care for people living with all types of blood cancer – including leukaemia, lymphoma and myeloma – and provide anyone affected with advocacy, information and support. There are more than 5,500 people currently on Bloodwise funded clinical trials and last year we sent out over 45,000 blood cancer information booklets.
Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. Currently, we have more than 3,000 members whom we seek to inform, empower and support at all stages of the disease from diagnosis forwards. We are the only UK charity dedicated to addressing the unmet needs of those with this long term, incurable condition. Membership is free and gives immediate access to our regular newsletter, helpline and conferences with expert consultant speakers across the UK. www.cllsupport.org.uk.
We are a patient-led group with a sole focus on CML operating overwhelmingly online to offer information, advocacy and support primarily to patients in the UK. Provided access to targeted therapies is available, most patients can now look forward to a life expectancy similar to that for the general population. Their concerns, therefore, tend towards treatment strategies that address the diminution of quality of life associated with a lifetime of drug treatment. We are also active in securing a similar environment for the small proportion of the patient population remaining unresponsive to solely drug-based treatments.
DKMS is an international not-for-profit organisation. Since 2013, in the UK we have registered over 500,000 people as potential blood stem cell donors with more than 860 giving second chances at life to people with blood cancers and disorders. Globally, we have registered over 9 million donors and facilitated over 80,000 donations.
Our mission is to find a matching blood stem cell donor for everyone who needs one. We do this by raising awareness, recruiting and retaining potential donors, and facilitating donations. With many people still unable to find the matching donor they need, our worldwide search for new donors continues.
Leukaemia Care is a national blood cancer support charity. We are dedicated to ensuring that anyone affected by blood cancer receives the right information, advice and support.
Leukaemia & Lymphoma Northern Ireland is a regional charity dedicated to finding better methods of treatment and detection that will improve outcomes and quality of life for blood cancer patients.
Based in the Centre for Cancer Research & Cell Biology at Queen’s University, Belfast, the charity funds laboratory research, education and clinical support.
Our team of scientists are experts in their field, working with centres all over the work to ensure that we are funding the most worthwhile research to have a global impact and eradicate blood cancer for patients in Northern Ireland and beyond.
Leukaemia UK makes a difference to families affected by blood cancer by funding innovative research into better care and treatments, funding emotional support, key hospital facilities and providing critical financial relief.
Lymphoma Action is the only UK charity dedicated to lymphoma. We're here to make sure that nobody faces lymphoma alone. However you are affected by lymphoma, we are here to help – with free information, support services and opportunities to connect with others.
MDS UK is the only charity in the UK focused solely to Myelodysplastic Syndromes (MDS).
MDS is an umbrella term for a range of rarer and less well known blood cancers. Since 2009, our organisation has been dedicated to provide support and information to families affected by the disease, and running campaigns to ensure access to the right care and treatment for the patients, with emphasis on quality of life. As of 2019/2020, MDS UK is also supporting research towards a cure for MDS.
The charity is based at King’s College Hospital, one of the main centres of excellence for MDS, and is supported by the main MDS experts in the UK
Myeloma UK is the only organisation in the United Kingdom focused exclusively on myeloma and related conditions.
We provide information and support services to patients and educational resources for healthcare professionals. Our translational research programme builds understanding of the causes of myeloma as well as driving the development of novel treatments, and is supported by our work in patient advocacy, improving access to treatment and care for our patients.
WMUK is the only charity in the UK focused solely on Waldenstrom’s Macroglobulinaemia (WM). WM is a rare type of blood cancer with its own distinct characteristics that require specialised treatment and care. WMUK’s goal is to improve the quality of life and survival of people with WM by providing support, and ultimately finding a cure.
If you would like to become a member of the Blood Cancer Alliance, please contact us at firstname.lastname@example.org.