This page is specifically dedicated to the Blood Cancer Alliance’s recently published report focusing on Access to Medicine for blood cancer patients.

BCA Joint Statement on VPAS covered by Pharmaphorum

Please see linked here an article by Leela Barham for Pharmaphorum which mentions the BCA’s joint statement with Charity Medicines Access Coalition (CMAC), Cancer52 on VPAS which was published in March 2023

BCA Joint Statement on VPAS

Please see linked here the BCA’s joint statement with Charity Medicines Access Coalition (CMAC), Cancer52 on VPAS which was published in March 2023.

BCA Statement on VPAS covered by Pink Sheet

Please see linked here an article by Leela Barham for Pink Sheet on the BCA’s statement on VPAS. 

BCA Statement on VPAS

Please see linked here the BCA’s statement on VPAS which was published in October 2022.

BCA response to NICE case for change consultation

Please see linked here (one) (two) the BCA’s response to the NICE methods of health technology evaluation: the case for change consultation.

BCA response to consultation on the Innovative Medicines Fund

Please see linked here the BCA’s response to the NHS England, NHS Improvement and NICE consultation on the Innovative Medicines Fund.

Meeting with Grahame Morris MP

On Monday 1st March 2021, we met with the Vice-Chair of the APPG on Cancer Grahame Morris MP to discuss the BCA’s Access to Medicine Report.

Within the meeting we also discussed a range of issues facing the blood cancer community including the Cancer Drugs Fund, vaccination access for blood cancer patients and calls for blood cancer to become part of the ‘Big Five.’

Answers to written questions in Parliament

Please find links below to the recently tabled questions questions by Martyn Day MP, the SNP Public Health and Primary Care Spokesperson:

• Medical Treatments: Innovation

• Outcome-based payments

• COVID-19 vaccinations

• Antibody levels

• National Institute for Health and Care Excellence

NICE Methods Consultation Review

Please find a link here to the BCA’s recently submitted response to the NICE Methods Consultation Review.

Answers to written questions in Holyrood

Please find links below to the recently tabled written questions by Miles Briggs MSP, the Scottish Conservative Chief Whip in Holyrood:

• Outcome-Based Payment

• Routine COVID-19 testing for NHS staff

• SMC and NICE

Meeting with Lord Mendelsohn

On Monday 30th November we were fortunate to meet with Labour peer Lord Mendelsohn to discuss the BCA’s recently published Access to Medicine report.

Within the meeting we also discussed a range of other issues facing the blood cancer community.

Answers to written questions in Cardiff Bay

Please find links below to the recently tabled written questions in Cardiff Bay by Andrew RT Davies, the Welsh Conservative Health, Social Services and Sport Spokesperson:

• New Treatment Fund

• Routine COVID-19 testing for NHS staff

• Outcome-based payment for cancer medicines

• New Cancer Recovery Plan

Official transcript from Health and Social Care Oral Questions

Please find a link here to the official transcript from Health and Social Care Oral Questions including a question from Shadow Public Health and Patient Safety Minister, Alex Norris MP on the need for covid-free wards and regular NHS staff testing for extremely vulnerable immuno-compromised cancer patients.

Answers to written questions in Stormont

Please find links below to the recently tabled questions in the Northern Ireland Executive by Pam Cameron MLA, the Deputy Chairperson of the Committee for Health:

• Establishment of safe settings for blood cancer patients

• Outcome-based payment for cancer medicines

• Raising awareness of blood cancer

Meeting with Alex Norris MP - Shadow Public Health and Patient Safety Minister

On Thursday 12th November, we were fortunate to meet with Shadow Public Health and Patient Safety Minister Alex Norris MP to discuss the Access to Medicine report.

Within the meeting we also raised the concerns of the blood cancer community to the latest shielding advice from the Government and discussed the ongoing NICE Methods Review

Please find here the national press release produced for the report.

LAUNCH EVENT

The report was launched at a virtual event on Monday 19th October chaired by Henry Smith MP.

Over 50 individuals from across industry, parliament, NHS England and regulatory bodies attended the launch session.

The event included a presentation on the findings from the report, a powerful patient testimony and a significant question and answer session.